There are a lot of CVS sufferers around the world young and old. In this blog post we will feature an interview with CVS sufferer, Stephen Narens.
Tell me about yourself. My name is Stephen Narens, I am 50 years old and from Wheeling, IL.
What are your hobbies/interests? I enjoy photography and spending time with my kids.
When were you diagnosed and how long have you been suffering from CVS? I was diagnosed back in 2001, but was suffering for years prior.
Any Doctor or Hospital horror stories? Yes, for sure. Just like all of us. Usually the same story just different Emergency Department. Staff would accuse me of being a drug user/seeker and told me it was all in my head. Doctors would perform useless tests on me even when I was having a full on attack (episode). Being alone in the hospital is the worse. My advice would be to always have someone with you that knows you and your CVS. A voice at the ED is a must!
Do you discuss your disease with others (outside your immediate family)? I did not at the time.
What is your go to routine when you get an episode? Hot baths and sleep are my best friend. I stop eating all together until I get my appetite back. Once I do, my wife makes me what we call CVS chicken. Its a great meal and I eat it up.
What is one thing you wish people would understand about CVS? That it can come at anytime, and I do mean anytime. Just because we look normal one day does not mean that we are better. I wish people would be more understanding when we have to cancel plans last minute. Because its due to the fact that we are sick. But please don’t stop inviting us! It hurts me how many people have no faith in me and have stopped including me in plans.