You’ve Seen Every Type of Specialist
From Neurologists to Psychologists people with CVS have seen them all. One specialist will direct you to go see another specialist, simply because CVS is so rare they don’t know what is causing us to get sick.
The Emergency Department Nurses (and Doctors) at your Local Hospital Know You and Your Family by Name
CVS patients know the routine of heading to the Emergency Department all too well. With a lot of sufferers having episodes every month or more, sometimes our home care remedies don’t do the trick, so the only option is to hop in the car and head to our local Emergency Department to see if they can abort the episode. Some things to bring for trips to the ED include Kleenex, a throw-up bucket, water, episode diary, and our favorite blanket (for children sufferers).
You Name a Medical Test, We’ve Had It!
CVS patients have gone through many medical tests per doctors requests to try to pinpoint what is causing our illness. However, as many of us know, there is no known cause of CVS. Some typical tests include EKG, CAT Scan, Ultrasound, Spinal Tap, Blood Tests, etc.
Our Classmates, Co-Workers, Friends, and Family Members Don’t Understand Why We Can’t Do Certain Things
Those who have been suffering from CVS for awhile tend to stay away from previous things that have caused episodes for us in the past Most people don’t understand, or comprehend why we refuse to do certain things. For example, for me I refrain from drinking alcohol excessively, because I know after one or two small drinks I start to feel funny. When it comes to preventing episodes CVS sufferers will go to great lengths to make sure that an episode does not occur. Some people even stay away from certain types of food (i.e. rich or ethnic).
Silence, Darkness, & Sleep Are Our Best Friends
During an episode CVS sufferers have a sensitivity to noise and light. A lot of sufferers need to be in a room where they can sleep in silence and complete darkness.
We Are All Too Familiar With The “BRAT” Diet
The “BRAT” diet or bland diet is known for being the bananas, rice, applesauce, and toast diet. This diet is typical for CVS sufferers to abide by during and after an episode. These foods are low in fiber, so they don’t cause gastrointestinal upset.