I am very open about the fact that I have Cyclic Vomiting Syndrome (CVS), if the topic comes up for some reason. Although, through various experiences I have come to the conclusion that it is best to air on the side of caution when it comes to sharing the fact that I have CVS with others.
Below are some scenarios that I am sure a lot of other CVS sufferers also have experienced:
- How is this different from bulimia or anorexia? CVS is not something that a sufferer has control over–they don’t want to vomit, and it is not an eating disorder.
- I know how you feel, I have had the flu….Actually, you don’t CVS is nothing like the flu. It is caused by different factors–stress, weather, other illnesses, certain foods, etc. CVS reoccurs unlike the flu, and sufferers deal with it multiple times a year.
- You vomit all the time? No, there are other symptoms that come with an episode besides vomiting. In fact some CVS sufferers may have episodes that don’t include vomiting at all. Other symptoms include nausea, paleness, migraine, tiredness, inability to swallow, sensitivity to light, etc.
- I have never heard of it…CVS is always ranked in the top 10 of rare diseases and it often gets misdiagnosed. Just because you have not heard of a disease does not mean that it doesn’t exist.
I work full-time and none of my co-workers know that I have CVS. If the topic comes up for some reason I will be open about it, but I don’t feel the need to bring it up. My family and close friends are aware of my disease, which is what is most important to me.